How are you coping at the moment with this new way of life? as we carefully keep our distance from those that we really want to just fling our arms around and hug. Today in England it is warm, bright and sunny so the day is passing fairly pleasantly for me, but my son Simon is finding it all very difficult to deal with.
For those of you who follow my blog you will know that Simon has, what we call between us, ‘A few little problems.com’, (in medical terms he has mild athetoid cerebral palsy and learning difficulties, along with dystonia) but that is quite a mouthful, so we stick with our little phrase.
For the past 2 years Simon has been living in a supported living complex and has been doing amazingly well, but the restrictions that COVID-19 had placed him under proved too difficult for him to comprehend. Loosing all his weekly trips out, and being confined for most of the day to his flat, alone, was just too much. As is often the case for Simon when faced with a situation that is causing distress, it is not safe for him to be alone, so he is back at home living with mum for the time being.
I wanted to write this blog just to raise a little awareness for all the parents who are in a similar situation. Im quite sure that I’m not the only one. Independant Living is all well and good, but there is a fine line between being able to live independantly and not. It only takes something like this horrible virus for us to cross that line and have to do a U turn and a rethink to adjust life, in order to keep Simon in as safe a place as possible, both for his physical and mental well being.
We are at least in the middle of some beautiful countryside so fresh air is in abundance, but the days are long and my thoughts go out to those who do not have the space that we have, but who are having to deal with similar situations. The lack of stimulation and routine is hard for many of us, but for those in similar situations and conditions to Simon it is incredibly difficult to fill endless hours with very little.
I heard him muttering under his breath today that he “was fed up with all this corona virus “s**t” (please excuse the language). I quietly thought to myself that I was fed up of trying to explain it on a daily basis in as easy a way as possible for him to understand! Im sure I’m not alone in those feelings as many parents of children or adults with special needs will be feeling the same frustration. As well as many parents of children without the additional needs. It makes me thankful for uncondtitional love which is what gets us through.
I take my hat off to you all, and wish you the strength and courage you need to get through this difficult time with those you care for. I hope you all stay well and healthy, and that we all get through this difficult time and soon come out the other side. Hopefully stronger and more thankful for the daily pleasures and routines that we may too often take for granted.
Love Alison x